Welcome to my blog entitled #Awareness.  This is a space that I will delve into my experiences as a person with a disability and my takeaways.  Good, bad, or neutral the encounter gave me an “Awareness”.  This blog is a place where I want to shine a light on situations/scenarios that as a person with a disability, I now have an Awareness that people may not have thought about.  Hopes being that through my insight and perspective I have passed on a new Awareness to you.  Sit back and let’s see where this road takes us into life as a quadriplegic in 2019, nearly 30 years since passing of the Americans with Disabilities Act.

There are uncountable situations I have experienced as a person with a disability that wouldn’t even have been on my radar     pre-disability.  This is also an important distinction in my posts.  Yes I am now a person with a disability.  Now classified as a C5/6 Quadriplegic following a dive into shallow water and severing my spinal cord in 2005. However, my first 20 years on Earth were as a vibrant, athletic young guy whose exposure into disability was minimal to say the least.  I have since become aware of and immersed myself within the expansive disability community.  I can see scenarios from both the current disabled situation and my former “normal” side.


  • 28 Aug 2019 4:09 PM | Lora Bigcraft (Administrator)

    There are many things an average person will want in their lifespan like happiness, to meet a partner, or landing the dream job.  Or if you narrowed it down to the person specifically, maybe it would be wants of good health, being a good friend, or going on a trip. Will those wants be the same between an average person and a person with a mobility disability?  Probably pretty similar for the most part.  Now, if they switched and wrote wants for the other person.  What do you think would be at the top of the list for the disabled person from an average person?  I bet I know. 

    Walk again. 

    There is an obsession by people with the ability to walk to think that’s all that matters.  I get it.  That’s all you know.  The ‘Abled Life’. Yet, when I talk with other people with SCI, walking is often far from the top of their list.  Talk to Quad’s and Para’s popular choices are:

    Quad’s

    Para’s

    • 1.  Hand and finger dexterity

    Bowel/Bladder Control

    • 2.  More functional muscles

    More function

    • 3.  Better sensation

    Walking

    These lists will vary depending on the person’s length of injury and also their injury level.  But, notice where walking shows up on the list.  At the bottom of Paraplegic’s want list.  In the long list of things we can get back, our walking legs typically isn’t the foremost thought.  For the most part, anyone using a mobility device can get through the day.  What we want is simply to speed up our day and make it easier overall.

    Another aspect I never thought of prior to my injury were social norms and how they may be impacted.  For you men out there.  How were you taught for a good introduction?  Walk up, look the person in the eye, introduce yourself, and give a good firm handshake.  Something along those lines?  As a Quad, shaking hands is something I hate.  Simply because I can’t shake hands.  Instead, I’m extending the dead fish attached to my wrist for the person to awkwardly hold.  Plus, looking up at people all the time gets old.  Especially you really tall folks, would be nice of you to find a chair or take a knee if we have a conversation.  Just a little common courtesy for the next time you encounter someone in a chair. 

    Daily life in a wheelchair is not as bad as everyone imagines.  No, it is not the ideal scenario and likely never crossed your mind as a possibility.  However, there’s no going back and life goes on.  You will quickly notice how UN-accessible the built environment is, have to wait while people take the big stall in bathrooms or the accessible parking space, but things can always be worse.  Day-in and day-out, no matter what is going on, the lack of ‘normal’ hands is by far the hardest/most frustrating part of Quadriplegia.  EVERYTHING takes longer and the likelihood of dropping something skyrockets.  That’s why I don’t have nice things, I have dropped everything.  At least now I have the #Awareness of knowing my limitations when holding items.  In fact, it has probably been a good couple of hours since my last drop so I need to wrap this up before the laptop takes another tumble down to the ground.


  • 18 Jul 2019 1:58 PM | Lora Bigcraft (Administrator)

    Back in April 2019, the Disability Advocates of Kent CountyIleana wears a white tee shirt, red pants and heels sits in her wheelchair on the stage at 2012 Ted Talks hosted their inaugural launch into Absolutely Accessible Kent.  An initiative to bring together the disability community with those involved in building design.  Resulting in a room filled with Architects, Designers, and Builders gathered listening to a glass ceiling shattering, world renowned Architect, Ileana Rodriquez.  Ms. Rodriquez has already earned global recognition utilizing Universal Design in her projects.  Ms. Rodriquez is so sought after, the country of Kazakhstan specifically contracted her to design their first fully accessible building.  She has done consulting in countries such as Japan, Germany, and Peru to name a few.  If that wasn’t impressive enough for you, how about throwing in that she is in a historically White Male profession as a Cuban born female that due to an Arteriovenous Malformation in her spinal cord at age 13, she can longer walk and uses a wheelchair for mobility.  After relocating with her family as a teenager to South Florida for better medical opportunities, Ileana joined her high school swim team and continued her education going on to graduate from Florida International University with a Bachelors and Masters in Architecture.  Still not enough for you?  Ileana set a U.S. record in the 200 Breaststroke and is also a former Paralympic Swimmer, representing the United States at London in 2012. 

    All of these global accomplishments and accolades and she hasn’t turned 35 yet. 

    With a high caliber of information and experience in Universal Design, but limited time, some of the key takeaways I have are as follows:

    • 1.   Education is important all around.
    • 2.   Who has a seat at the table?  Missing input?
    • 3.   Design. Plan. Design.
    • 4.   Not if, but when this happens.

    Education cannot be stressed enough.  As a society we can help each other.  Architects and builders have their technical backgrounds, but they may not know what is best for people with disabilities within their buildings.  It is important we do our part to share information on what is needed and beneficial for full inclusion and access.

    When discussing a new project, where are you getting input?  Who is giving the input?  Who is your target?  Heard from them?  Who is not at the table?  Should they be?  Has this been done elsewhere?  If so, what did they encounter and would they do anything differently?  These questions need to be asked, and more than once.  Re-evaluate to check if the answers change.  If not, what changed?

    Beginning design matters the most.  If designed poorly or the information is not clearly followed correctly there is a greater chance of coming back having to re-do.  Taking more time, money, while upsetting both workers and customers.  Plan accordingly by talking with all parties to be involved.  Design the project around these factors.  Design to help all people instead of just a few (ramp to be accessible aside from main entry)

    Lastly, don’t think “If ….happens I will get…” think “When….happens I will have…”.  It just makes sense to think long term.  If you think of what you will need in the future and what accommodates those needs, design/plan and make it now.  When the need arises, accommodations aren’t needed.  They are built in because of the knowledge you used, and in the end it just makes sense.  Make changes for the long term benefits and uses by all people.  #Awareness


  • 21 Jun 2019 1:15 PM | Lora Bigcraft (Administrator)

    I can still remember when he came in the room.  “That was unexpected, but he should be able to help me.” were along my first thoughts.  Yet he hadn’t said a word.  Then he asked all the same questions, did all the same checks and tests on me, my answers and results hadn't changed from before, but I had a new hope.  This guy should be able to give me helpful information and guide me through this disaster. 

    Dr. Scelza had my attention and curiosity the instant he rolled into the room.

    I was a freshly injured quad within my first month of inpatient therapy.  Dr. Scelza was in his Residency working with Spinal Cord Injuries at U of M, and is paralyzed and a wheelchair user himself.  At 20 years old, this may have been my first interaction with someone with a visible disability in a prestigious job.  Absolutely was my first since getting injured.  Didn't see any others zooming in and out of rooms and down the halls anyway. 

    A great article in New Mobility Magazine about Doctors with disabilities brought these memories back.  The article emphasizes the need to have people with disabilities involved in our health care needs, as they have a deeper understanding of everything entailed with our disability.  Not that people without disabilities cannot do the same.  However, having someone involved in your care that has experienced it themselves provides an instant credibility.  Such as telling you that using one type of suppository over another can speed up a bowel program.  Not that those that walked in before didn’t have the same information, but advice carries different weight when it comes from a relatable source.  I mean how common is it for non-disabled people to use various suppositories in search of what works best???  I haven’t heard of that homework assignment during Med School.  Although, maybe they should…fits well with sharing in the full experience of what their future clientele experience.   Next time students try to experience paralysis by using wheelchairs for a day, go the full extent.  They need to do a suppository bowel program, use a catheter to pee all day (also forcing them to find an accessible bathroom and hope someone isn’t in the one accessible stall), go shopping in a clothing and grocery store, out to eat somewhere they haven’t been, and try to find parking spots.  All the common areas where struggles occur.  Goes well with not asking others to do what you haven’t done yourself.  Right?!

    Dr. Scelza isn’t likely to be rolling into too many of your lives, considering circumstances of my intro to him, but his impact can carry on.  As more and more people with disabilities take on new and interesting careers, we are out more in the public eye.  We have a chance to be that informational resource or inspirational light of possibility for others.  We can expand the influence out into every work field.  Not just within healthcare. 

    How many scenarios have we been in that including the disabled community from the beginning could have avoided??  Just because you haven’t seen or heard of somebody with a disability in a job/career doesn’t mean anything.  As we continue to knockdown barriers and follow our passions, simply being out there for others to see can be helpful.  Similar to any other project, the involvement of people with disabilities from the beginning is important (cough cough... housing continually built inaccessible). If nothing else, we make others aware how helpful engagement with the disability communities early on provides long term benefits and reduces unnecessary struggles or re-do’s for all people.  #Awareness


  • 28 May 2019 8:54 AM | Lora Bigcraft (Administrator)

    What’s in a name…?

    It goes by multiple names such as Rugby, Quad Rugby, Wheelchair Rugby, or Muderball, I had my very first exposure to wheelchair rugby back in 2005.  I was 20, freshly injured and at U of M doing inpatient rehab after diving into shallow water and crushing vertebrae in my neck; severing my spine, and becoming a C-5/6 Quadriplegic.  Someone brought in a video for us to watch called Murderball.  A documentary following players on the U.S. Wheelchair Rugby team and discussing their personal history from injury, to playing on the team, and life as a person with a disability.

            For those of you that haven’t seen or heard of Quad Rugby, it looks chaotic.  Eight people in funny looking, tank-like wheelchairs rolling around on a basketball court with a volleyball and bashing into each other.  For the most part you aren’t wrong either.  Whenever I describe it to somebody; I typically say that it is a mix of basketball and football rules, played in bumper cars, on a basketball court.  It’s pretty fast paced and wild.  Our one qualifying and universal characteristic is that each team member has some form of impairment in all of our four limbs.  That is the one qualifier to becoming a Quad Rugby player, you must have an impairment in all four limbs of your body.  The majority of the players are Quadriplegic’s typically varying from C4-C8 Spinal Cord Injuries.  Although there are many other types that play, such as people with Cerebral Palsy, amputees, or other degenerative diseases.

            I’ve been playing for almost two years now and have been able to take a few things away from my experiences so far.  First is the great community of players from across the country, all welcoming and encouraging even during matches.  Secondly, is the chance to compete again as part of a team.  I didn’t know how much I missed competitive team sports, until I joined up and was able to actually play something again.  I’ve known that I like to compete and win, but there only so many times that I can play Old Maid or the Match Game with my nieces and nephew before I want something a little more advanced.  And Rugby has provided that opportunity.  Lastly, my involvement allows the chance to be around people similar to me.  People with disabilities of various levels and severity, but going for the same goal while also able to crash into anything along the way without worrying about breaking or damaging something.  I’m sure any wheelchair user will share the same thought, it’s nice to not have to be careful and not bump into stuff, concerned about damaging or breaking it!  Now, the challenge is just how hard can you hit someone and that is a welcome switch up.  I’ve also learned travel tips, daily life hacks, or about new gear to use in daily life as a way of just being around other people that are in the same situations.  All in all, this has been a great experience and I look forward to seeing what else will develop in this new world I’m venturing into. #Awareness



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